Dear Ella, Sometimes life doesn’t go as planned, most people probably don’t think of 11 year olds even having plans for their life, but I know you do and it’s quite a detailed plan actually. You often lay in bed or sit in class with the future running through your head…
“To be beautiful means to be yourself. You don’t need to be accepted by others. You need to accept yourself.”
The symptoms I experience are auras, flashing lights, pins and needles in the side of my face and arms, slurred speech, confusion and nausea
Last year I decided that I owned WAY too many books and needed to do something about that. At first I tried to sell them, but that took too long and not many people wanted to buy books for a reasonable price, taking them all down to a charity shop was almost impossible to do without transport so I came up with the idea to offer a free bundle of books to any of my fellow Spoonies who requested one.
“I’m going through a bit of a crappy period with my health right now. For the past month or two I’ve been struggling with something that has yet to be explained…”
It’s not often that a stranger asks me about my disability so when someone does I find it difficult to answer. A couple of days ago I was out shopping with my Mum and a friend when a little girl asked me why I was in a wheelchair. I find it extremely hard to answer…… Continue reading Curiosity Is A Special Thing
For at least 2 years I tried my hardest to build up my strength and get myself walking properly,I’d wear my splints most every day (although I’ll admit not as much as I should have)and attend physio sessions twice weekly. But nothing seemed to work I went from using a manual wheelchair only when traveling…… Continue reading Chapter 3
Today is a special day. 10 years ago I was the recipient of a new heart. I was given a new life. And even though things didn’t turn out quite like I’d hoped, I’ll forever be grateful because I’m still here. If you’re reading this and you haven’t joined the organ donor list I urge…… Continue reading It’s a very special day!
For the past few weeks I haven’t been feeling myself to be honest. My health has been up and down like a yoyo and I think it’s all got a bit too much. Emotionally I’m exhausted. Fingers crossed my health decides to sort itself out and I start to feel more like myself again asap!…… Continue reading I’ve not been feeling myself…
“What if?” I have sat there with that question running through my head on many occasions. I have daydreamed about the life I “should have had” and mourned over the things I will never get to do. I have drifted off to sleep imagining scenarios of the things I might be doing now if life…… Continue reading It can get the better of me.