Dear Ella, Sometimes life doesn’t go as planned, most people probably don’t think of 11 year olds even having plans for their life, but I know you do and it’s quite a detailed plan actually. You often lay in bed or sit in class with the future running through your head…
The symptoms I experience are auras, flashing lights, pins and needles in the side of my face and arms, slurred speech, confusion and nausea
when she suddenly moved closer and asked “doesn’t it hurt?”
“I’m going through a bit of a crappy period with my health right now. For the past month or two I’ve been struggling with something that has yet to be explained…”
I have had to make a few fairly big decisions since I first got sick, decisions no “normal” young person should have to make. Some of the choices I made might have changed my life and some of them did. When I had my heart transplant I was left with consolidation in the bottom of…… Continue reading Chapter 4: Making Decisions
For at least 2 years I tried my hardest to build up my strength and get myself walking properly,I’d wear my splints most every day (although I’ll admit not as much as I should have)and attend physio sessions twice weekly. But nothing seemed to work I went from using a manual wheelchair only when traveling…… Continue reading Chapter 3
Today is a special day. 10 years ago I was the recipient of a new heart. I was given a new life. And even though things didn’t turn out quite like I’d hoped, I’ll forever be grateful because I’m still here. If you’re reading this and you haven’t joined the organ donor list I urge…… Continue reading It’s a very special day!
“What if?” I have sat there with that question running through my head on many occasions. I have daydreamed about the life I “should have had” and mourned over the things I will never get to do. I have drifted off to sleep imagining scenarios of the things I might be doing now if life…… Continue reading It can get the better of me.
Writing about the start of my journey has brought back a lot of memories, most of which I prefer not to think about ,but believe it or not there are a handful which are not so bad there’s a particular one that can bring a smile to my face even now. During my recovery I…… Continue reading Sometimes all we need is a little kindness
I have never been an easy person to get blood from,when I was younger the only place they ever seemed to get it from was my hands, but the years of sticking needles in them has left the veins scarred and now its very rare to get any from there. Most people have the best…… Continue reading They like to play hide and seek